So I’m asked to describe how I concentrate to write or focus on anything when pain is such a major contributor in my life and a permanent. I thought about it for a second. The doctor had used the whiteboard and drawn “my brain” with pain in the background and words like focus, concentration, motivation scribbled at the front with arrows looking like they were trying to get into my brain. Understandably these things all present a challenge but the way I see it, is that the pain is like an intricate piece of lace that is draped across my brain. In between the detailed lacy gaps things like concentration, motivation and focus do filter through. And depending on how tight the stitching is sometimes it is easier for those things to flow through and other times not so much. This might make sense to some of you – I’m not sure.
Also I’m not big on the word hope. I don’t want hope – I want it sorted now or I will just live with it until some such miracle cure arrives – but I’m not spending my life or any time at all with the hope that I will be fine again. It is what it is. They say hope is a word used for people who don’t want to accept. That is not who I want to be – I know a part of me longs for my body to be pain free but that is just not how it is.
I believe that determination comes from my soul and I will carve my way through whatever it is the universe chooses to share with me and be grateful at the same time – because even though I can’t walk very far, I can write – just a different double u (w)…. 🙂
© Kait King, 2015
Nothing says home like the food you know, the smells that trigger head movies and the comforting arms and hands that picked you up and helped you mix and stir and “help” cooking when you were a kid. They now welcome you back into the fold, embrace your grown-upness but still visualised as the child, as you will always be. Family time is noise in the kitchen, clattering dishes and chattering mouths – we women of many words create more warmth with our talking breath, better than the lukewarm sun does, trying to impress us through a shameless glass. The men, young and old – three generations of my blood, gather around the finger food that has been laid out to stop them from starving before the main meal…if you believe that, you will believe anything.
My father, the patriarch, his unwilling body fighting his sharp, determined mind – his sharp, determined mind that used to beat his body has put its hands up and retreated. His brain is stronger than anything else, bar maybe his heart. He peers over his heavily framed glasses all the better to see a watch face his grandson has handed him to look at. His 80 year old eyes squint and recognise, the information is swift and he says the battery is a blah blah…..his mind as sharp as a knife. His son-in-law hands him a glass of wine which he carefully holds, the glass is heavy and cumbersome to him, due to his muscular dystrophy. He already can’t lift the glass to his lips but our mother brings straws with them so that he doesn’t have to.
His grandson, Jay, is a loud kid and is learning to pull his head in, but does show signs of promise with his unresearched fury at certain injustices. Maybe the same way my father felt about all of those things 60 years or more ago. My father brought all of us up to question everything, accept nothing at face value and to take risk in a positive way. He had a strong sense of what was right and fair and he brought four crusaders into the world to carry on that legacy. Give a shit, the majority of the population won’t – so you just have to. It’s your duty as a human being with the gift of life on this earth…
I live on an island and we are very much an outdoors crowd, particularly water sports – besides swimming; I loved horse riding, kick-boxing and wrestling. But now I find I’m pretty much a forced recluse due to the inoperable and permanent nerve damage from 2 failed surgeries, which affects my left side in a chronic-acute-neuralgic-pain-syndrome kind of way
I call myself a cave bear as I really am just hibernating…. or am I in a cocoon ready to show the newly morphed me? Instead I am left with what feels like a bad experiment. So I don’t go out much – you don’t when you deal with chronic pain – it’s exhausting. It’s just too painful, hard, embarrassing and awkward to go out.
Anyhoo, back to the story. I went to talk to my shrink for an hour today – she is lovely; spiritual, intuitive, and…. hold onto your hats, she does not believe in CBT (cognitive behavioural therapy). Instead she believes in the meta-conscience, an intriguing concept and much more of a fit for me.
So I understand it’s all about identifying myself now – not who I was, but who I am now. I am not sure of what defines me now – in all entirety. I was absolutely convinced I had found my calling when I joined the police with the goal to help our kids. So my faith in me is shaken and I’m finding out who I am as this other me. I know I will get through this because this is my journey – somehow there will be some sense in all of this pain. I was on enormous amounts of methadone in 1998 along with gabapentin, fentanyl and a dozen other medications. I couldn’t even shower myself or brush my teeth. For years I was a zombie until something inside me said “Kait, this is not you – this is not who you are and this is not what should define you.” So I took a long time weaning myself off the medication and I survived when I was supposed to die, I managed to have a life when I was told my life was over. It’s a horror story and not one I want to write but I got through that – dealt with pain on a daily basis through no help of anyone else and carved a life for myself and my son, who had lost me for nearly 5 years already.
Then I give up everything to go to get my degree in Criminology. My son is grown up and doing his own thing. I graduate in 2011 – start my job and slip on my front step. Need a discectomy – it goes badly wrong and triggers old pain syndrome from lung nerve damage of 1998 into its rabid self. I’m in the high dependency unit again – major drugs. I begged everyone around me that if anything should happen they are not to put me on that poisonous methadone. They put me on morphine instead and so the hell has rolled on for the past two years with no positive outcomes. There has been a barrage of medications again and I don’t want to have to take them. Sometimes I feel like a failure when I have to succumb because I am in so much pain but I don’t know what else to do. And the knives I put in my own back become innumerable in this too.
So yeah – I use self-hypnosis and breathing techniques – I do my best not to take medication. It dumbs me down and kills any motivation toward anything. It kills you on the inside too so you don’t have any spirit to feel human any more or to fight for a life – it consumes you in a rolled up carpet, a dark cupboard and deaf/mute existence. I see so many people who are left dependent on heavy medication and with no existence – these are the true zombies of the world. These are the walking dead, the emotionally unfeeling, uncaring and unknowing. It’s almost a way of keeping things quiet….Don’t let them get you 😉
Gingerly I type the words, wondering if I may be the only person who thinks like this. god’s daughter is turning out to be more appalling than horrific, more repulsive than disgusting. I can feel her like black tar in my mind. She calls me to write her out – to layer her like a black wedding cake, all the details – the spiders, the webs, the cockroaches, the mould and dusty aura of her mind. The corners of her life are all in shadow, a shadow I have to be brave enough to step into and feel the darkness that is god’s daughter. She wants to be created but she doesn’t want me – I am nothing to her, just like everyone else.
And she is nothing like me…
that Evil Beast
Thriving on hurt
when all you want
always comparing in loss
Punching out your feeble Anger
But your Family pays the cost
Vulnerable? Were you
Shouldn’t you know better
than to put them through
Poor little person…
Is that what you want
them to think?
So here you stand at
You can change all of this
in a Blink
Kait King 2017