Do You Really Want To Know Me

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I don’t want to be known

just by an icon on your phone

I want to be recognized

by the color of my eyes

the curve of my smile

Things you’d know when

you’ve known me a while

© Kait King, 2016

I just want it to end

i just want it to end

So I’m sent back and forth

and around again

to specialists and surgeons

who say it’s in my brain

the wiring’s fucked

Is what they say

because a butcher unfortunately

hacked away

at your hope

your dreams

your aspirations

your purpose

you

Forgiveness and acceptance

words to deal with

spilling your guts makes you better

I think that’s just a myth

to stop me

hold me

trap me in belief

I just want it to end

© Kait King, 2015

I can wait some more

So now, sick of being shoved from pillar to post and being basically bullied into corners, we have decided to go legal….My sister has been an incredible force. There is no way in heaven or earth I would have been able to do all the paper work and appointments on my own – or at all actually. She took all of that worry and confusion away from me.

We were fighting for me to have the correct amount of a serious medication called Pregabalin, AKA Lyrica – and I need the most you can take and a little Morphine thrown in here and there, just to keep those pain centres quiet. And I’m like “Hell yeah! Shut those fuckers down!” Hoping for a miracle and getting as close to that as I could with a lot of the “noise” pain being dampened. I still have severe pain in my back/hip/sciatica and the odd chest pain that incapacitates me too, but certainly not the constant stabs all over the left hand side of my body that was exhausting. And my right eye socket was so incredibly painful I couldn’t open my eye and I wanted to literally rip it out, or smash my head in. I used to pinch the skin next to the internal pain in my chest where the nerve damage is and also dig my thumb deep in to my eye socket to at least change the pain. I know I can’t be free of it at this stage, but at least not have the same gnawing hits. Anyway, I digress…so we go to see this lawyer and he’s fantastic. He’s onto it, he knows what needs to happen, what we need to get or locate etc. This is great as we needed this guidance and the clout that the lawyer gave us. The hardest part – well, there were two to be perfectly honest. The first hard part was actually going to talk to this lawyer – with such a complicated case there is so much information that needs to be assessed. And this is the firm to be doing this, but I was so fragile BeFoRe I left the bloody house! I felt overwhelmed, I cried and had to put my mascara back on – it didn’t help. I think I was in disbelief that after all these years and after all of our struggle on our own, someone was going to listen and possibly help.

Anyway, the second part is this; while you are the client/patient/victim/however you wish to see yourself, people get so involved in the complications of my case that they talk as if I am no longer present.My sister and the lawyer started chatting, I’m on so much medication and in so much pain I lay on his couch with a glass of water as my meds give me major cotton-mouth. So the hardest part of all of this (and it sounds sooooo not hard), but was listening to my sister and the lawyer “discuss” my case which made me feel like I wasn’t even there – and to be perfectly honest, I’m not when I’m on such medication.
But it also didn’t change the fact that I had to listen to how permanent my situation is, that there is nothing anyone can do and it’s just a matter of medicating her, sorting out what help I need and the physio required to “rehabilitate” me – world’s largest joke if that is supposed to be happening right now…because all I have felt is re-victimised, unworthy of help, forgotten and just a number. It’s not ok, the 2 medical misadventures I’ve had, it’s not ok to be abandoned by your so-called insurance company, it’s not ok when someone botches something, that they never have to own up – ever. The guy who ripped my nerves in my chest in 1989 is now the “golden boy” of thoracic surgery….how the hell did that happen? And I often wonder to myself if he would remember me – more than likely not. I daydream about getting an apology – a genuine “so sorry I fucked up” apology. I have waited since 1989 – I can wait some more….

In spite of

inspiteof

I don’t believe you have nothing to say

that you don’t want to stand up

and shout

“don’t treat me that way”

I don’t believe you can keep quiet

for very much longer

the hate in you grows stronger

even though you deny it

it kills you every day

I don’t believe there is happiness in you

that you skip through every day

that your glasses are a rose-colored hue

that you are not reliant in almost every way

but that’s just not true

You drag yourself through every day

knowing that he will

punch you

humiliate you

control you

and you want to kill him

for killing you –

you try to think of another way

but nothing else will do

you have no money, no car or hope

this mean,

ugly-spirited human

says you can’t cope

in the real world

But you know that’s not true –

right?

© Kait King, 2015